Frequently asked questions
Data security and protection
No, no personal data is processed or stored in the RAAB7 Software nor held in the Amazon Web Services (AWS) Cloud.
In some circumstances, limited personal data (participant name) may be collected by the RAAB Survey Team. This is done for the sole purpose of “mop up”. Mop-up is a feature to provide the survey team with a list of participants who have either had incomplete assessments or who were not available at the initial visit to the household. The data is stored locally on mobile devices for the duration of data collection only. This personal data does not leave the country it is collected in and is never accessible to London School of Hygiene & Tropical Medicine (LSHTM) or Peek Vision Ltd (Peek).
During data collection, data is transmitted via a secure encrypted connection to a Peek-managed secure cloud-based Amazon Web Services (AWS) server (located in Germany or India only). AWS Cloud is one of the most secure cloud computing environments available today. RAAB7 data is only stored on the AWS Cloud for the duration of survey data collection. Find out more about RAAB7 data security and protection.
After data collection is complete, the dataset and survey reports are transferred to the RAAB Backup Database, held on a secure server managed by the LSHTM. LSHTM’s International Centre for Eye Health stores this permanent backup of the data for safe keeping only.
Robust data security and data protection are an integral part of RAAB7’s design. Survey data is processed in line with the most stringent data protection regulations.
The RAAB7 software is secure and we follow global best practice in data security to ensure data is kept safe at all times. Find out more about our security processes.
All RAAB7 surveys include temporary data storage on an Amazon Web Services cloud-based server, based in Germany or India only. It is not possible to host data locally within the survey country. Amazon Web Services (AWS) Cloud is one of the most secure cloud computing environments available today. The AWS Cloud is built to satisfy the security requirements of healthcare providers, global banks and other high-sensitivity organisations. Find out more about AWS Cloud security and other RAAB7 data security and protection document (pdf).
Once the survey is completed and the survey reports generated, the data is transferred to the secure RAAB Backup Database, hosted on LSHTM’s server located in the UK.
Although no personal data is processed or stored by RAAB7 Software, we continually ensure our data management is in line with the EU and UK's General Data Protection Regulation (GDPR). The GDPR has set the tone for data protection internationally, creating a new global standard to which many countries are aligning. This means that the way RAAB7 survey data is managed, processed and safeguarded is in compliance with the guiding principles of data protection regulations across the globe. The RAAB7 Partner Agreement provides RAAB7 partners with legal assurance regarding data protection.
Under the EU and UK's General Data Protection Regulation (GDPR), RAAB data Is the sole property of the RAAB Partner, meaning that they are a custodian of any personal data collected and will seek informed consent from participants to be able to use their data. If participants do not consent to their data being used, the RAAB Partner should exclude them from data collection.
Peek and the LSHTM do not have access to any personal data. These roles are clearly set out in the RAAB7 Partner Agreement.
The RAAB partner decides what level of data to make available on the Public RAAB Repository website once the survey is completed. This is stated in the RAAB7 Partner Agreement.
All survey metadata (survey location, year of completion, Principal Investigator, RAAB Trainer, optional modules used, sample size, response rate) is made available on the Public RAAB Repository website. Many Principal Investigators (PIs) also choose to give permission to make further survey outputs (such as the anonymous dataset and/or survey reports) available on the site after an 18-month embargo period. In doing so, they contribute to future global eye health estimates and provide a wealth of valuable information for secondary analysis to support the sector.
RAAB data significantly contributes to the vision loss estimates calculated by the Vision Loss Expert Group for the Global Burden of Diseases (GBD) Studies that populate the IAPB Vision Atlas. In recent GBD studies, RAABs accounted for 61% of the data sources on causes of blindness and vision impairment and 46% of the data sources on trends in prevalence of blindness and vision impairment.
PIs who provide open access data on the RAAB repository website are invited to join an International RAAB Co-Authorship Group.